Cerebral Palsy Research Network (CPRN)
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Cerebral Palsy Research Network (CPRN)

The Cerebral Palsy Research Network (CPRN) is a group of health professionals and patient advocates collaborating to improve the treatments and outcomes for people with cerebral palsy (CP).

CPRN endeavors to establish a common data model integrated into the electronic medical records of health care centers for the collection of demographic, patient-reported measures, clinical measures, and intervention procedures. The collection of relevant data across the multiple centers will allow clinicians, researchers, and families to conduct research aimed at identifying the best interventions for people with different levels of severity and/or other characteristics.

Mary Gannotti, professor of physical therapy and director of the ITR Center of Health, Care, and Wellbeing, is a member of CPRN’s leadership team. Serving as the chair of the Adult Work Group, Gannotti is the designer and developer of the common data model for use with adults who have CP. This formal link between CPRN and the ITR contributes to ENHP’s existing interdisciplinary research efforts by inviting students and faculty members to:
  • engage with clinical partners locally and nationally,
  • obtain the needed data from persons with CP,
  • conduct broad research projects to inform clinical practice,
  • assist persons with CP and their families to make best use of the database, and,
  • participate in high quality educational programs to educate consumers.